Bionical Emas

Everyone here at Bionical Emas would like to wish our US colleagues, friends, family and associates a Happy 4th July!

Bionical Emas is proudly supporting Metabolic Awareness Week (1 to 7 July). Metabolic disorders are conditions that affect the body’s metabolism and ability to break down food. Metabolic Awareness Week is a week-long opportunity to come together to raise awareness of inherited metabolic disorders by sharing stories, and helping people understand more about the complex and rare conditions and how they affect people. Recently, Naomi Litchfield, Director of Patient Advocacy at Bionical Emas, spoke to Laura Smith van Carroll, MMSc Head of Insight & Advocacy at Metabolic Support UK. Listen here as Naomi shares her thoughts and insights on what to expect as a metabolic patient and family when joining a clinical trial. https://lnkd.in/eARPbMc7 #MetabolicAwarenessWeek #MetabolicSupportUK #InheritedMetabolicDisorders #RareDisease #BionicalEmasSupports

Today on Global MND Day (21 June), we recognise and acknowledge the devastating impact that Motor Neurone Disease (MND) has on people and their families around the world. MND affects the cells in the brain and nerves, called motor neurones, this can lead to muscle weakness and loss of movement. Unfortunately, there is no cure for MND at this time, but there is a significant need to raise awareness about its symptoms and to support research to find effective treatments. #GlobalMNDDay #MND #motorneuronedisease #ALSMNDWithoutBorders #BioncialEmasSupports 

Bionical Emas is proud to support #WorldFSHDDay by raising awareness and recognizing patients and families around the world affected by Facioscapulohumeral muscular dystrophy (FSHD). FSHD is a hereditary rare genetic muscular disease that targets the muscles of the face, shoulders, upper arms, and lower legs. Almost a million people worldwide live with FSHD, and unfortunately, there is no cure. However, there is hope, thanks to the patient advocates, clinicians, and researchers dedicated to finding new treatments.   To show your support and find out how you can take part in this year’s Orange Slice Selfies campaign, please visit: https://lnkd.in/gv9_QkX #BionicalEmasSupports #FSHDSociety #FSHD #UniteToFindACure #CureFSHD

Today our LGBTQ+ Ally Network are holding a rainbow bake sale for Pride Month to raise funds for MindOut, a mental health service run by and for lesbian, gay, bisexual, trans, and queer (LGBTQ+) people. #PrideMonth #RainbowBakeSale #HappyPride

Today, as part of Pride Month, we had the pleasure of hearing from Eva Echo (she/they). Eva is an activist, writer, and public speaker who is passionate about transgender rights and mental health. She spoke to us about the importance of inclusive healthcare and her involvement in legal action against NHS England in the High Court, challenging the unlawful waiting times for trans patients as well as being a better ally inside and outside of work. We are incredibly grateful to Eva for giving up her time to speak with us! #PrideMonth #Education #TransgenderHealth #allyship

Bionical Emas are proudly supporting National Black Family Cancer Awareness Week (13 – 19 June 2024). In the US, Black Americans have the highest cancer death rate for most leading cancer types. During #BlackFamCan, efforts will be made to raise awareness about this disparity and to highlight the importance of discussing family cancer history, prevention, screening, and inclusion in clinical trials. #BlackFamCan #CancerAwareness #BionicalEmasSupports

Today sees the start of Carers Week, a week-long UK-wide awareness campaign dedicated to increasing visibility for carers. This year's theme, ‘Putting Carers on the Map,’ aims to highlight the increasing pressures carers experience and to campaign for much-needed recognition and support. Carers Week raises awareness of the challenges carers face on a daily basis - including the impact on their finances, employment, physical and mental health, and wellbeing.   As a CRO, Bionical Emas is committed to embedding the voice, needs, and perspective of patients, families, and carers in the clinical trials and Early Access Programs we run. Our Patient Advocacy Team is available to work closely with Patient Advocacy Groups to understand the unique needs of a patient community and their support systems, and incorporate this insight into the design and delivery of our programs to ensure carer burden is reduced however and wherever possible.   We look forward to listening and learning from the voices and experiences of carers that will be shared this week, and wanted to recognise the millions of people across the UK providing unpaid care, and the countless carers across the globe. #CarersWeek2024 #CarersWeek #PuttingCarersOnTheMap

Batten Disease is a rare neuro-degenerative disorder that typically begins in childhood and devastatingly has no cure. Batten Disease primarily affects the nervous system, and symptoms include seizures and a progressive loss of motor, language, visual, and cognitive skills. This Sunday, June 9, is International Batten Disease Awareness Day, and Bionical Emas is proud to raise awareness and show our support to patients, caregivers, and families affected by this rare genetic disease and to the researchers and advocates tirelessly working to identify new treatments. #InternationalBattenDiseaseAwarenessDay #BattenDay2024 #BattenAwareness #BDFA_BattenDiseaseUK #RareDisease

Stacy Collins, Senior Director, Operational Delivery at Bionical Emas is looking forward to speaking at the Trial Interactive Customer Summit and joining a panel to discuss OpTImize with Trial Interactive: Tips and Tricks to get the most out of your Trial Interactive Experience. This two-day conference is taking place from 25 – 26 June in New York and will cover practical tips, hidden features, and strategic insights into transforming the way you use Trial Interactive, to enable to streamline the clinical trial processes.  To discover more about the summit and to register, please visit: https://lnkd.in/d4eabtdu #TrialInteractive #optimize2024 #ClinicalTrials #LifeSciences