What are the benefits of using a patient advocacy group to improve communication with physicians?
Communication with physicians can be challenging for patients who face complex or chronic health issues, have multiple providers, or experience barriers such as language, culture, or literacy. A patient advocacy group can help bridge the gap and facilitate better outcomes for both patients and physicians. In this article, we will explore the benefits of using a patient advocacy group to improve communication with physicians.
A patient advocacy group is an organization that supports patients in navigating the health care system, accessing resources, and advocating for their rights and needs. Patient advocacy groups can be focused on specific conditions, such as cancer, diabetes, or rare diseases, or on broader issues, such as quality of care, patient safety, or health equity. Patient advocacy groups can provide information, education, counseling, referrals, peer support, legal assistance, and representation for patients and their families.
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I suspect close to zero. They don’t sign his pay checks. They may be advocating discredited data/concepts…….peasants bearing torches????!!!!
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In my experience, I find absolutely vital to have patient advocacy groups, not only for specific conditions but also for things that can be categorized as routine medical conditions.
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If a patient advocacy group works as intended, it brings an understanding of the chain of care in relation to the chain of need. It also has the ability to collect and decribe the full burden of life and how given care responds to it in an way healthcare can´t.
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As long as patient advocacy groups, focus on providing the most seamless and understandable, patient experience, then they can help the patient have an extraordinary medical experience, no matter what they are going through. But once they start trying to focus on what they are not specialized in, such as treatment methods, Treatment times, symptoms of certain treatments, and other things that physicians are specialized in, that’s when the advocacy groups expertise should no longer be seeked out, because that is not their area of expertise. The physician should focus on the healthcare part and providing the best possible treatment, while advocacy groups should focus on the experience of the patient through the entire medical process.
A patient advocacy group has the main role of helping patients communicate effectively with their physicians and other health care providers. This can involve preparing patients for appointments by assisting them in identifying their goals, questions, and concerns, as well as accompanying them to appointments or facilitating remote communication via phone, video, or online platforms. It also includes clarifying medical information, terminology, and instructions, asking follow-up questions and requesting clarification or confirmation, expressing patients' preferences, values, and opinions, negotiating treatment plans, options, and alternatives, resolving conflicts, complaints, or misunderstandings, coordinating care among multiple providers and settings, and documenting and tracking communication and outcomes.
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Furthermore, the group may consult the patient/family to whom expert they have to apply for help. Sub-medical specialties appear more often than in the past and individual medical portfolio for each physician is of high importance.
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They can be of great value to healthcare in giving a singular voice to a big group of patients with individual needs. When developing healthcare, healthcare itself doesn´t have a way to collect and extract findings from patients that are common or crucial to a better delivery of care.
Engaging with a patient advocacy group can have numerous advantages for patients, such as improving their satisfaction, trust, and confidence in their health care. It can also increase their engagement, involvement, and empowerment in their own care. Moreover, it can enhance patient understanding, knowledge, and literacy about their condition and treatment. Furthermore, it can reduce patient stress, anxiety, and frustration while improving adherence, compliance, and self-management. In addition to this, it can improve patient health outcomes, quality of life, and well-being. Moreover, it can protect patient rights, privacy, and autonomy while preventing harm, errors or malpractice.
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Patients have benefits by engaging in these groups as they can share their experiences with others and get comfort and better unerstanding of their own life and what to expect of healthcare.
Using a patient advocacy group can also have numerous benefits for physicians. It can improve the physician-patient relationship, as well as increase satisfaction, respect, and recognition. Additionally, it can enhance communication, education, and counseling skills, while reducing workload, time pressure, and liability. Furthermore, it can improve efficiency, productivity, and performance. Moreover, it can improve quality of care, safety, and ethics as well as support professional development, learning, and innovation. Finally, it can promote leadership, advocacy, and influence.
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It can be an effective channel to reach patients with messages of prevention and self supported care and healthier life style. It is also well known to be very important, even though there is more to wish for, in recruiting patients to clinical studies and trials.
Patients with varying health issues and needs can find help through patient advocacy groups, both locally and nationally. To locate and work with a patient advocacy group, search online for groups by condition, location, or service. Additionally, you can ask for referrals from physicians, nurses, social workers, or other health care professionals. It's also important to contact patient advocacy groups directly and explore their services, fees, and credentials. Once you choose a patient advocacy group that matches the patient's goals, expectations, and preferences, establish a clear and mutual agreement with the group. Furthermore, maintain regular and open communication with the patient advocacy group and provide feedback to evaluate their services.
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To my experience patient advocacy groups more than welcome physicians to work with them. They can also benefit by including HCPs in their organization in order to close the gap between patient and healthcare.
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These groups can filter the information asked by a lot of patients to the physicians. There are countries where mobile/cellular doctors' phone numbers are busy on a daily basis for many hours with calls and text messages requiring most of the time non-useful info, stressing the physician.
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