Join the waiting list for a screening of the Immune Deficiency Foundation's much-anticipated documentary “Compromised: Life Without Immunity,” which debuted at the 2024 PI Conference, held June 20-22 in Chicago. https://bit.ly/3WgMqMa
Immune Deficiency Foundation
Non-profit Organizations
Hanover, MD 5,423 followers
Improving the diagnosis, treatment, and quality of life of people affected by primary immunodeficiency.
About us
The Immune Deficiency Foundation improves the diagnosis, treatment, and quality of life for every person affected by primary immunodeficiency. We foster a community that is connected, engaged, and empowered through advocacy, education, and research. Whether you've been recently diagnosed, have been living with a primary immunodeficiency (PI) for years, or just think you might have a PI, we are here to help. Our programs are meant to create a healthier day, every day, for every person with an immune deficiency.
- Website
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http://www.primaryimmune.org
External link for Immune Deficiency Foundation
- Industry
- Non-profit Organizations
- Company size
- 11-50 employees
- Headquarters
- Hanover, MD
- Type
- Nonprofit
- Founded
- 1980
Locations
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Primary
7550 Teague Road
Suite 220
Hanover, MD 21076, US
Employees at Immune Deficiency Foundation
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Peter Atherton
Retired technology business executive
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Peter Wang
Maker & Investor | Founder @ First Principles Studio, WSDM water | Former BuzzFeed CTO
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Roberta Rochman, RN, MBA, CPHIMS
Health Access Advocate at Immune Deficiency Foundation
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Christopher Scalchunes
Vice President of Research at Immune Deficiency Foundation
Updates
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Hurry! This is your last chance to participate in our 2024 National Immunoglobulin (Ig) Treatment Survey (ends July 30). Share your experiences to help healthcare providers and researchers improve care for primary immunodeficiency. See if you qualify to take the survey here: https://bit.ly/3VuJUA8
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Plasma donation is vital because it helps save countless lives every year. However, many prevalent misconceptions continue to surround it, from questioning its safety to ethical concerns about donor compensation. We're committed to separating fact from fiction and shedding light on the immense impact your plasma donation can have. We invite you to explore the link below to learn the truth behind plasma's lifesaving capabilities and why your contribution changes the lives of those who need it. https://bit.ly/3VpRrAh Together, we can dispel the myths around plasma, encouraging donation and offering hope to patients worldwide.
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Ezra Fineman interviews other teens with hyper IgM as host of the Hyper IgM Foundation's podcast, "Patient Voices." “As bad as hyper IgM is, there are always positives that can come out of it,” said Ezra. https://bit.ly/3x2AxzI
Teen hosts podcast featuring peers with hyper IgM syndrome | Immune Deficiency Foundation
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"Listen to your patients—especially if they have a chronic illness,” Bonnie Doak tells medical school students when she speaks to them about patient care. An Immune Deficiency Foundation volunteer for 33 years, Doak, diagnosed with common variable immune deficiency (CVID) supports peers with PI and educates both patients and health providers. https://bit.ly/3yNYBGP
Volunteer established PI education groups 33 years ago | Immune Deficiency Foundation
primaryimmune.org
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That’s a WRAP! Thank you so much to everyone who attended the #2024PIConference. It was such a joy to see everyone for a weekend of learning, connecting, and networking. See you again in 2026!