The Native BioData Consortium (NBDC) is a nonprofit organization of leading researchers and Indigenous members of tribal communities that are focused on increasing the understanding of Native American genomic issues. The founders of the NBDC are Native American and/or have close relationships to current Native American research. The primary purpose of the NBDC is to build a biobank repository of Native American genetic data and samples in order to further genetic research that will benefit the Native American participants while protecting the rights of the individuals and respecting their tribal sovereignty.
External link for Native BioData Consortium
Eagle Butte, SD 57625, US
Native BioData Consortium reposted this
I am a scientist. I am Indigenous. I am a TUSOAN, I am a father. I am angry. I am a researcher. I feel the USA will not protect Native interests. The big Data Wild West is hurting many, but as always, its hurting Indigenous people and lands first. https://lnkd.in/gUsAWakb
Hello All, our site was down for about a week but its back up! We will have a brand new and uber functional page up soon! It was sourced and designed by a Native Web developer from First Nations' in Canada. It's gonna amaze you! Native Bio believes in Us (Us meaning, Natives of the Americas, #LandBack #DataBack) http://nativebio.org/
Native Bio's new best friend, Barbara J. Evans' paper came out. It's about the Belmont Report/Common Rule's stunning insufficiency for the research and data landscape Wild West that we find ourselves in! It is an increasing trend that even some Universities won't sign IRB agreements anymore because IRBs are seen as insufficient or ineffectual for ethical protections and/or the University's Intellectual Property guaranteed to them by the Bayh-Dole Act. Tribes need to hurry and recognize the new colonialism, the new Gold Rush, the new land grab all around Data, especially around Genetic Data https://lnkd.in/ggMKGfTy
Only 100 years ago, Native Americans — the original inhabitants of these lands — were conferred U.S. citizenship. With this new status, they should have had the same power as other citizens to shape America, but it took another 40 years of relentless struggle for all Native people to secure the right to vote. Learn more about the meaning and continued impact of the 1924 Indian Citizenship Act: https://lnkd.in/eeXZyXez @IllumiNativeOrg @NativeOrganizersAlliance @NativeAmericanRightsFund #HoldThePower #NativeAmericanCitizenship #NativePower
Native Bio has been co-authors on several blockbuster papers since 2019. This one about DNA governance that is equitable, decolonial and forward thinking is just one of many. https://lnkd.in/ghXgKCGq
Native BioData Consortium reposted this
Believe me, this is all about #Business, LinkedIn family! #weAreStillHere & we weren’t conquered. And we care about our continuation as a people and culture. No melting pot. And we care about the land and our resources. And we care about accuracy in historical narrative. And we care about recovery & restoration of land and sovereignty! Money is tied to land and resources. Without them there is no politik and no sovereignty and no culture.
It was a great honor to partner, sponsor, and bring NativeBio speakers to the first ever Indigenous Data Summit!
More than 650 people attended the 2024 Indigenous Data Sovereignty and Governance Summit! “We were really blown away by the interest generated by this event,” says Summit project manager and Collaboratory for Indigenous Data Governance Research Coordinator Andrew Martinez (Salt River Pima-Maricopa Indian Community). “I’ve felt very comfortable and at home (at this Summit), and I’m relieved that these conversations are finally happening,” said Executive Director and Vice President of the Native BioData Consortium Joseph Yracheta (P'urhépecha). Read our summary and find photos of the 2024 #IDSov & #IDGov Summit here: https://lnkd.in/gyCfdthq . . #databack
Native Bio is fundraising to build a multi million dollar home and headquarters for Indigenous Data Sovereignty. It will provide much needed data protections, training, jobs and Tribal Nation growth. Please let your Philanthropic organizations and Equity Minded Benefactors know. https://lnkd.in/gKaSbq82