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Today and every day, Take2 honors and remembers the brave men and women who made the ultimate sacrifice while serving our country. #MemorialDay…
Today and every day, Take2 honors and remembers the brave men and women who made the ultimate sacrifice while serving our country. #MemorialDay…
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Health and fitness are key components in helping individuals find sustainable recovery. Stopping the use of drugs and alcohol is important, but…
Health and fitness are key components in helping individuals find sustainable recovery. Stopping the use of drugs and alcohol is important, but…
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While I have a lot of current job knowledge with HL7 ⚕ and FHIR 🔥 , I am pursuing the official HL7 certifications for HL7 V2 and HL7 FHIR. This…
While I have a lot of current job knowledge with HL7 ⚕ and FHIR 🔥 , I am pursuing the official HL7 certifications for HL7 V2 and HL7 FHIR. This…
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Experience & Education
Licenses & Certifications
Volunteer Experience
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HRC Gala Committee Chair
Human Rights Campaign
- 6 months
Civil Rights and Social Action
Media marketing chair for 2017 Chicago HRC Gala
Publications
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Longitudinal changes in patient distress following interactive decision aid use among BRCA1/2 carriers a randomized trial
Medical Decision Making
Background. Increasingly, women with a strong family history of breast cancer are seeking genetic testing as a starting point to making significant decisions regarding management of their cancer risks. Individuals who are found to be carriers of a BRCA1 or BRCA2 mutation have a substantially elevated risk for breast cancer and are frequently faced with the decision of whether to undergo risk-reducing mastectomy. Objective. In order to provide BRCA1/2 carriers with ongoing decision support for…
Background. Increasingly, women with a strong family history of breast cancer are seeking genetic testing as a starting point to making significant decisions regarding management of their cancer risks. Individuals who are found to be carriers of a BRCA1 or BRCA2 mutation have a substantially elevated risk for breast cancer and are frequently faced with the decision of whether to undergo risk-reducing mastectomy. Objective. In order to provide BRCA1/2 carriers with ongoing decision support for breast cancer risk management, a computer-based interactive decision aid was developed and tested against usual care in a randomized controlled trial. Design. Following genetic counseling, 214 female (aged 21–75 years) BRCA1/2 mutation carriers were randomized to usual care (UC; n = 114) or usual care plus decision aid (DA; n = 100) arms. UC participants received no further intervention; DA participants were sent the CD-ROM–based decision aid to view at home. Main Outcome Measures. The authors measured general distress, cancer-specific distress, and genetic testing–specific distress at 1-, 6-, and 12-month follow-up time points postrandomization. Results. Longitudinal analyses revealed a significant longitudinal impact of the DA on cancer-specific distress (B = 5.67, z = 2.81, P = 0.005), which varied over time (DA group by time; B = −2.19, z = −2.47, P = 0.01), and on genetic testing–specific distress (B = 5.55, z = 2.46, P = 0.01), which also varied over time (DA group by time; B = −2.46, z = −2.51, P = 0.01). Individuals randomized to UC reported significantly decreased distress in the month following randomization, whereas individuals randomized to the DA maintained their postdisclosure distress over the short term. By 12 months, the overall decrease in distress between the 2 groups was similar. Conclusion. This report provides new insight into the long-term longitudinal effects of DAs.
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