Insmed Incorporated’s Post

Stories from the communities we serve have always inspired our work to make a difference for people living with rare diseases around the world. In honor of Rare Disease Day 2024, we proudly partnered with RARE Revolution Magazine to launch #ItsRareForMe – a new global initiative to elevate the voices of the rare disease community, provide insights that go beyond statistics, challenge assumptions, and emphasize the value that patients bring to healthcare.   We invite you to read Rare Revolution Magazine’s special edition for #RareDiseaseDay featuring 10 impactful stories from people across eight countries in Europe, covering four rare conditions: https://lnkd.in/e8UXx7T4   #RareDiseases #ChiesiGlobalRareDiseases 

It's a healthcare revolution! The burden on HCPs will persist, but with digital tools, we can make that burden lighter. It's an opportunity for hospitals, pharma, and every healthcare stakeholder to unite and create a healthcare landscape where everyone benefits. Let's embrace the digital era and chart a course towards a healthier future. Together, we can turn this burden into an opportunity for growth, innovation, and improved patient care. Contact us if you have any questions or concerns about our patient care platform. #patienteducation #patientcare #patientfirst #hospitals #kols #doctors.

Managing 7,000+ rare diseases is challenging for healthcare professionals. Patient uniqueness demands tailored care. Liberate Pro, our innovative education platform, empowers patients, doctors, and nurses by delivering crucial information, fostering better understanding, and enhancing care quality for individuals and their families facing rare diseases. #healthliteracy #patientcare #patientcentricity #healthcare #careinformation #rarediseases #patienteducation #pharmaceuticalindustry #pharma

🦓 Today, on World Rare Disease Day, we join hands to honor the "Year of the Zebra," a symbol that beautifully encapsulates the uniqueness and diversity of the rare disease community. Why a zebra? In medicine, zebras represent those conditions that are uncommon and unexpected, reminding us that while common ailments demand our attention, we must also be vigilant for the rare and complex. This year's theme is a powerful reminder that every rare disease story is unique, yet they all share a common thread of resilience and courage. In recognizing the "Year of the Zebra," we're not just acknowledging the challenges faced by those with rare diseases, but also celebrating their extraordinary journeys. These zebras in our community inspire us with their strength, educate us with their experiences, and motivate us to advocate for better research, treatments, and understanding. Let's wear our stripes with pride today, showing solidarity with the rare disease community. Together, we can create a future where every zebra finds their place in the herd, and no rare disease journey is walked alone. #RareDiseaseDay2024 #YearOfTheZebra #RareDiseaseAwareness #UnityInDiversity 🦓

"Today is National Rare Disease Day, Feb 29 - a day to honor the courage of those living with rare diseases, the dedication of healthcare professionals, and the commitment of our sponsors.  It's because of our united efforts that we're able to pursue groundbreaking advancements in rare disease research. Your support, expertise, and resilience are the cornerstones of our progress, bringing us closer to breakthroughs that once seemed beyond reach. Let's continue to work together, fostering hope and driving innovation for a healthier tomorrow.  #NationalRareDiseaseDay #UnityInResearch #HopeForTheFuture"

The latest Fireside Chat is out now! Join Damon Dierker, OD, FAAO, and Nate Lighthizer, OD, FAAO, as they delve into the most recent research on cytokine levels found in the tears of individuals suffering from dry eye disease. Discover the groundbreaking study "Pro- and Anti-Inflammatory Cytokine Levels in Tears of Dry Eye Subjects," and dive into this episode to enhance your comprehension of cytokines' pivotal role in dry eye disease. https://hubs.ly/Q025x3rR0 #dryeye

🤝 Meet our #EUSisterProjects As projects funded under the same Horizon Europe call topic: "Personalised blueprint of chronic inflammation in health-to-disease transition", we will contribute to the common goals of understanding the risk factors that trigger the transition from health to disease, providing personalised prevention measures and reducing the burden of #chronicdiseases. GlycanTrigger EU Project, ENDOTARGET EU Project, miGut-Health, AIDA EU project, PREVALUNG EU, PRAESIIDIUM, CARE-IN-HEALTH, Intercept T2D, iPROLEPSIS, INITIALISE, HaltRONIN Horizon. Follow us through our groundbreaking research! #HorizonEurope

Today is #FCSAwarenessDay! IAS' course "Severe Dyslipidemias in LATAM: Confronting the Future" has a module with Maria Cristina Izar, MD, that focuses on the diagnosis and natural history of this rare disease. Watch it now and help raise awareness: https://bit.ly/40oHLZ5 #FCS

🌐 Today, on this unique date of February 29, we honor Rare Disease Day - a time to stand in solidarity with the millions whose lives are touched by rare diseases. 🔬 At Alira Health, we are privileged to contribute to the advancements in healthcare that aim to bring hope and solutions to those facing the challenges of rare diseases. 💡 It's a reminder of the power of innovation and collaboration in transforming the lives of patients and their families. 🗣️ In light of this, we invite you to our session planned for March 13th at 12,05 at the World Evidence, Pricing and Access Congress, where strategic insights for maximizing the launch of treatments for rare diseases will be shared. 🤝 Join Dr. Ahmad Bechara and I recognizing the resilience of the rare disease community. #togetherwecan make a difference. --> https://lnkd.in/eEByCzj7 #RareDiseaseDay #HealthcareInnovation #LifeSciences #PatientAdvocacy #Solidarity

Don't miss an upcoming educational opportunity provided by RARE Revolution Magazine. ‘Understanding cold agglutinin disease (CAD) from a multi-stakeholder lens’ is the topic of their webinar on September 19. Rare Revolution staff and experts will discuss the importance of shared decision making, the role of multi-disciplinary teams and more. Register free here: https://lnkd.in/gUXS8rwY #rarediseaseawareness #raredisease #rarediseases #patientcentricity #patientcentric