Insmed Incorporated’s Post

#WorldBrochiectasisDay raises awareness for this chronic lung disease that is often under-recognized, under-treated, and under-researched. At Insmed, we're working to change this paradigm by seeking transformative solutions and advocating for the BE community so that patients never feel unseen or unheard. Learn more about how to join us below. #CountUsIn

June is Myasthenia Gravis Awareness Month. Read more about the chronic autoimmune disease in our latest blog. Also discover how we are caring for our patient, Mary Walden, who has a rare form of MG. 🔗https://ow.ly/o13Z50SmMGo #clinicaltrials #MGAwareness #myastheniagravis

Maverex supports Rare Disease Day. We understand the unique challenges in gaining market access for rare disease interventions. Speak to a member of our market access team to discuss how we can support your rare disease market access needs and help bring innovative interventions to patients worldwide #rarediseaseday #rarediseaseday2024 #marketaccess

Today is Heart Valve Disease Awareness Day!    NeoChord is proud to raise awareness of degenerative #MitralValveDisease, the 3rd most common cardiovascular disease in both Europe and the U.S.    It’s estimated that 3-5million patients have severe #MitralRegurgitation, but less than 3% receive proper treatment. The ideal therapy for patients with a #DegenerativeValve could be early intervention that restores normal valve function. Minimally invasive delivery of #NeoChords may allow a physiologic restoration without limiting future valve treatment options.     #NeoChord is the world leader in beating heart mitral valve chordal repair.   US: CAUTION – Investigational Device. Limited by Federal (or United States) law to Investigational Use only.   #NeoChord #ValveDiseaseDay #MitralRepair #HeartMonth

🚨🚨 JUNE 19TH IS WORLD SICKLE CELL DAY!!! 🚨🚨 June 19th is World Sickle Cell Day, an international awareness day observed annually with the goal to increase public's knowledge and understanding of sickle cell disease and the challenges experienced by patients and their families. #WorldSickleCellDay #SickleCellAwareness #SickleCell #SickleCellDisease

Story of the color purple, some snippets below

Watch to learn how my colleagues and I mitigate the challenges that come with rare disease early phase trails and the unique individual approach we take to support them. https://lnkd.in/e8gtBW9B #CNS #ClinicalTrials #ChooseCalyx

Today, let's raise awareness for bronchiectasis, a condition where the airways in the lungs become damaged, widen, and scar. This leads to a reduced ability to clear mucus and particles from the air we breathe. Let's show support for those affected by this chronic lung disease. #bronchiectasis #pulmonaryrehab #lungdisease #chroniclungdiseaseawareness #rehabilitation #spreadawareness

Diaceutics are proud to be supporting Rare Disease Day this week by sharing our colours and being proud to be blue. As misdiagnosis is one of the main issues rare disease patients face, our latest blog sheds light on the problems that laboratories face in rare disease treatment and how they can help overcome them. Read our blog here: https://lnkd.in/eE-fq7e5

#RareDiseaseDay reminds us of the need to find innovative solutions for patients. As a clinical research professional, I'm dedicated to making a difference in the lives of patients. I've had the privilege of working on various clinical trials that aim to bring new treatments to market and improve patient outcomes. Let's continue to raise awareness and work together to find innovative solutions for these underserved communities. #ClinicalResearch #RareDiseaseDay