“Patients with Parkinson’s, we hold the answer. It’s within us, and the scientific community needs us to participate [in research] because we are the key,” says Lauren Traub. “I really feel hopeful that we are close [to a cure] and I’m excited to be a part of it.” Tune into our latest podcast episode where you’ll hear from our expert panel: • Maggie McGuire Kuhl, vice president of patient engagement at MJFF • Lauren Traub, registered nurse Team Fox member diagnosed with PD in 2018 • Bret Parker (he/him), executive director for the New York City Bar Association and co-chair of MJFF’s Patient Council, diagnosed with PD in 2007 • Paulina Gonzalez-Latapi, MD, movement disorder specialist and assistant professor of neurology at Northwestern University Feinberg School of Medicine Together, they discuss the practicalities of volunteering for research, including the many benefits of participation for the volunteer and the entire Parkinson’s community. Listen now: https://bit.ly/4cf5GiL
The Michael J. Fox Foundation for Parkinson's Research’s Post
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PhD Student (Sheffield Hallam University & La Trobe University). Registered Learning Disability Nurse & Social Worker. My PhD study is about Radiotherapy & people who have a Learning/Intellectual Disability & cancer.
Having undertaken a qualitative study exploring the experiences of parents of children diagnosed with cerebral adrenoleukodystrophy, I’m sharing details of our recent publication: Piercy, H., & Nutting, C. (2023). The experiences of parents of children diagnosed with cerebral adrenoleukodystrophy. Child: Care, Health and Development, e13184. https://lnkd.in/erhCmd4z Here's a link to the article: https://lnkd.in/ehm-wF_r
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Certified Senior Advisor/Certified Placement & Referral Specialist with CarePatrol of the Baltimore / Annapolis Corridor
CarePatrol released a new podcast. Did you know that approximately 55 million people worldwide are estimated to be living with Alzheimer’s disease (AD) and other dementias? AD is a degenerative brain disease and the most common form of dementia. As the disease progresses, many individuals with AD or dementia may require additional care to ensure their safety. For instance, during the middle to late stages of AD, providing 24-hour supervision may become necessary. In certain cases, more specialized care may be required. It is crucial to be prepared and aware of care options to effectively meet the needs of a loved one. Listen in as we explore the definition and purpose of memory care, highlighting the specialized care and support it offers for individuals with Alzheimer’s disease and other forms of dementia. Click to listen to this episode: https://loom.ly/CNYZQIs
What Is Memory Care? – CarePatrol
https://carepatrol.com
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CarePatrol released a new podcast. Did you know that approximately 55 million people worldwide are estimated to be living with Alzheimer’s disease (AD) and other dementias? AD is a degenerative brain disease and the most common form of dementia. As the disease progresses, many individuals with AD or dementia may require additional care to ensure their safety. For instance, during the middle to late stages of AD, providing 24-hour supervision may become necessary. In certain cases, more specialized care may be required. It is crucial to be prepared and aware of care options to effectively meet the needs of a loved one. Listen in as we explore the definition and purpose of memory care, highlighting the specialized care and support it offers for individuals with Alzheimer’s disease and other forms of dementia. Click to listen to this episode: https://loom.ly/CNYZQIs
What Is Memory Care? – CarePatrol
https://carepatrol.com
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CarePatrol released a new podcast. Did you know that approximately 55 million people worldwide are estimated to be living with Alzheimer’s disease (AD) and other dementias? AD is a degenerative brain disease and the most common form of dementia. As the disease progresses, many individuals with AD or dementia may require additional care to ensure their safety. For instance, during the middle to late stages of AD, providing 24-hour supervision may become necessary. In certain cases, more specialized care may be required. It is crucial to be prepared and aware of care options to effectively meet the needs of a loved one. Listen in as we explore the definition and purpose of memory care, highlighting the specialized care and support it offers for individuals with Alzheimer’s disease and other forms of dementia. Click to listen to this episode: https://loom.ly/CNYZQIs
What Is Memory Care? – CarePatrol
https://carepatrol.com
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CarePatrol released a new podcast. Did you know that approximately 55 million people worldwide are estimated to be living with Alzheimer’s disease (AD) and other dementias? AD is a degenerative brain disease and the most common form of dementia. As the disease progresses, many individuals with AD or dementia may require additional care to ensure their safety. For instance, during the middle to late stages of AD, providing 24-hour supervision may become necessary. In certain cases, more specialized care may be required. It is crucial to be prepared and aware of care options to effectively meet the needs of a loved one. Listen in as we explore the definition and purpose of memory care, highlighting the specialized care and support it offers for individuals with Alzheimer’s disease and other forms of dementia. Click to listen to this episode: https://loom.ly/CNYZQIs
What Is Memory Care? – CarePatrol
https://carepatrol.com
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CarePatrol released a new podcast. Did you know that approximately 55 million people worldwide are estimated to be living with Alzheimer’s disease (AD) and other dementias? AD is a degenerative brain disease and the most common form of dementia. As the disease progresses, many individuals with AD or dementia may require additional care to ensure their safety. For instance, during the middle to late stages of AD, providing 24-hour supervision may become necessary. In certain cases, more specialized care may be required. It is crucial to be prepared and aware of care options to effectively meet the needs of a loved one. Listen in as we explore the definition and purpose of memory care, highlighting the specialized care and support it offers for individuals with Alzheimer’s disease and other forms of dementia. Click to listen to this episode: https://loom.ly/CNYZQIs
What Is Memory Care? – CarePatrol
https://carepatrol.com
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Navigating the Labyrinth: The Quest for a Diagnosis (Part 3) https://hubs.ly/Q02bFPz50
Navigating the Labyrinth: The Quest for a Diagnosis (Part 3)
foresite360.com
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This week on The Brain Trust #CME #Podcast: Early Detection in Latino Communities, Host Dr. Raj Shah welcomes family physician Evelyn Figueroa, MD, Director of Community Engagement, Department of Family & Community Medicine- University of Illinois at Chicago College of Medicine and Director, Pilsen Food Pantry. They explore ways family physicians can improve early detection of Alzheimer’s disease in their Latino patients. Learning Objectives: · Describe specific challenges affecting the Latino communities that exacerbate the burden of Alzheimer’s disease. · Name one way family physicians can create a supportive environment for early detection of Alzheimer’s disease and related dementias in their Latino patients. Listen here: https://lnkd.in/guUhdgeZ
Episode 12: Early Detection in Latino Communities
https://thebraintrustproject.com
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Prevent Blindness Joins National Glaucoma Awareness Month in January to Educate the Public and Professionals on the "Silent Thief of Sight" — PRBuzz.co — Prevent Blindness provides #free glaucoma #educational resources, including a new promotional toolkit for "The Glaucoma #Community glaucoma #patient #testimonial and #medical #expert #interview videos CHICAGO, #Dec #27 #2023 Prevent Blindness, the nation's leading #eye #health and #safety #nonprofit #organization is #once #again participating in January's #National Glaucoma #Awareness #Month to provide #patients #care #partners and #professionals with a variety of helpful resources to educate on glaucoma, one of the leading causes of blindness in the United States. In addition to a dedicated webpage at https://lnkd.in/gARyZxGE, Prevent Blindness offers a variety of downloadable fact sheets, including a listing of glaucoma financial assistance resources, shareable social media graphics in English and Spanish, and educational videos. These awareness month efforts are supported by funding from Glaukos. Glaucoma is often referred to as the "silent thief of sight," because symptoms can begin gradually, usually affecting peripheral vision first. Late in the disease, glaucoma may cause "tunnel vision." However, even central vision can also be seriously damaged. Once vision is lost to glaucoma, it cannot be restored. To help support patients and their care partners, Prevent Blindness and Responsum Health offer "The Glaucoma Community," a free, comprehensive platform available via a web browser or through a mobile app for Apple or Android users. Available in multiple languages, the program offers educational glaucoma content, a personalized newsfeed, and the moderated "Community Chat," where users can connect to share their experiences and advice, along with providing a source of support. The Glaucoma Community members are also invited to join the dedicated Facebook group. New this year is The Glaucoma Community Promotional Toolkit for healthcare and public health professionals. Included in the kit are: All Glaucoma Community content is written by professional health writers and reviewed by the Expert Advisory Council for The Glaucoma Community. Program partners for The Glaucoma Community include the BrightFocus Foundation, The Glaucoma Foundation, Glaucoma Research Foundation, and the National Medical Association
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Why don't we solve problems before they happen? The curious case of Developmental Dysplasia of the Hip (DDH) (1/2). Here's my story as a physician who suffered DDH baby hip medical complications during his career. Now, I'm remembering baby cries and parent´s desperation. Thanks to the inspirational podcast by Pablo Castañeda (International Hip Dysplasia Institute IHDI, USA) interviewing Emily Schaeffer, PhD (Hip Hop Network, Canada), on hip global registry and pathways, now I can elaborate this rationale. Current medical paradigm is prophylactic. Sometimes, parents claim in the office, “why don´t they perform a clinical exam/hip ultrasound on my baby on time?”. It's a tricky question, especially if it's the first time you are viewing the baby at 6 months of age with developmental dysplasia of the hip or hip dislocation. Just waiting to have the baby hip problem clear for diagnosis could be discouraging. In my region, we have no DDH screening and registry programs. Therefore, parents acting as “doctors only for today” are taking care of their babies with hip braces. Sometimes parents ask in the middle of the night, “are you sure this brace is good for my baby, he/she can´t sleep?” … Parent´s education is mandatory: if they don´t understand the goal of brace treatment on hip development, they can abandon this treatment and waste time. Moreover, in complicated cases, we're performing more surgical treatments than expected, all of them with highly demanding surgical skills. Sometimes, demanding hip procedures are so delicate that one could prefer “don´t touch”. Surgical risks are the best reasons to have DDH screening and registry programs. For example, even in high level specialized hospitals to be sure if hip reduction after a treatment of hip dislocation is not easy, having risks of hip re-dislocation, proximal femur growth disturbing or residual hip dysplasia with a final outcome of hip osteoarthritis. Anesthesia risk in young baby is a concerning as well. Postoperative exams to evaluate hip reduction, just like Magnetic Resonance Imaging, need anesthesia or sedation, toxic contrast, etc. Radiographs and sonographs need careful interpretation. Further, it's important the surgeon´s ability who must achieve a good hip reduction and/or bony reconstruction with the minimum of blood loss, surgical manipulation, and surgical time. This is the way, we (family and health providers) are living inside the DDH problem. Now, we're waiting for the demonstration that this problem is a problem. Yes, that's the way science works. When we have more data from national and global registries, we will be able to answer more key questions and be accurate in diagnosis and treatments. Finally, to prevent DDH and hip dislocation is less complicated than treating them. Going upstream to face this problem (being early in diagnosis and treatment) is better than going downstream (arriving delayed to solve the problem with avalanche-effect). #pediatrics
New episode of “Straight from the hip” out today! This week I speak with Emily Schaeffer, PhD about developing care pathways and the success Hip Hope Network has had implementing! https://lnkd.in/gBYnDqyn
Emily Schaeffer, The Global Hip Registry & the development and implementation of care pathways for DDH around the world
https://spotify.com
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