Omega Healthcare Management Services’ Post

My firm belief: When considering treatment options for rare eye diseases, families and individuals impacted by blindness/low vision should make decisions based on education, not desperation. And it is up to the leaders of the community to make that education a priority. I consider that one of my top priorities as CEO of the Curing Retinal Blindness Foundation (CRB1.org), which is why I am dedicating a ton of time this year to being that resource I desperately needed 24 years ago. Social media posts, email messages, and an annual conference are great - but getting to actually talk with people that were walking my walk a few steps ahead of me was the big game changer for me and my family. I have been chatting with other patient organization leaders and industry folks in this space about this topic for years... and I am thrilled that many folks are moving education of patient communities to the top of their priority lists now. If you are serving families impacted by CRB1, please share this info about our upcoming monthly calls with them. And if you have successful initiatives that are empowering and educating your patient community, I'd love for you to share them. #PatientOrganization #PatientCommunication #Education #Leadership #RareEyeDisease #RareDisease #ClinicalResearch #Research

Do you know someone that has the CRB1 gene mutation? If so, show them this post so that can talk with Kristin.

Check out the interview below for more details on how we assisted Jess and Pete in creating their perfect wet room! 🌟

If you know sooner, you can act faster. Let’s talk about this.

There are many ways that #RMvlc #SupportsSurvivors. Your gift on #COGivesDay ensures our services are free, trauma-informed, & impactful. 🌟 https://buff.ly/3Gnhykk

May is Stroke Awareness Month, raising awareness of what a Stroke is, the FAST signs to look out for and how to reduce the risk of a Stroke: https://ow.ly/MaMv50RoWht #StrokeMonth #StrokeAwarenessMonth

Did you know? Women are often less likely to receive bystander CPR because rescuers often fear accusations of inappropriate touching, sexual assault or injuring the victim. Cardiovascular disease is the No. 1 killer of women, causing 1 in 3 deaths each year. It’s a third of our mothers, sisters, friends, neighbors, coworkers and more. It’s a third of the women we can’t bear to live without. As the leader of our 2024 Go Red for Women campaign, we invite you to introduce it to the community during CPR Week, June 1 - June 7. 9 out of 10 of people who suffer cardiac arrest outside of the hospital die. In most of these cases, bystander CPR was not performed. This is happening in workplaces, at home and on athletic fields in our community. We know we can change this and save more lives in Marion. That is why the Marion Heart Walk will broaden efforts to drive CPR education, awareness and community initiatives. Our goal is to have at least one person in every household learn CPR and the Heart Walk, as our largest community campaign with the most people involved, it is a key initiative in reaching this goal. #AHA #CPRWeek #CPR #Women

🌍 Today, on International Stroke Day, let's raise awareness about the importance of stroke prevention and support for survivors. Together, we can make strides in research, education, and community outreach to combat this life-changing condition. Let's work towards a world where strokes are preventable, treatable, and survivable. If you have not heard about ABAStroke yet, it’s the best day, to take a look at what they’re doing. #StrokeAwareness #HealthcareAdvocacy 🧠💙

🤝🏻 In 2020, CSHP received funding from the Centers for Disease Control and Prevention for the Preventing Adverse Childhood Experiences: Data to Action (PACE-D2A) to support work to measure, track and prevent adverse childhood experiences (ACEs). As the grant cycle comes to a close, we're proud to showcase our outcomes and impact. --- Did you know over 55% of high school students in Wayne County report experiencing an adverse childhood experience? And fewer than one in four have people in their neighborhood who acknowledge and encourage them. But, just one caring adult can positively impact a child's life. #BeTheOneWayneCo is a public education campaign that aims to reduce childhood adversity by encouraging adults in Wayne County to act. The goal of the campaign is to ensure everyone knows they have the tools to reduce the impacts of ACEs in their communities and neighborhoods. Anyone can be the adult who makes a difference for a young person. Learn more: https://lnkd.in/efmdUbZP

We are promoting the NF2 Young Adults group today and we have a new flyer that will be sent from clinics shortly. The group is aimed at Young Adults from aged 18+ If you have a young adult or are a young adult and would like to join the group - to chat, to linger, to feel connected or whatever you can use the QR code in the flyer - or join here https://lnkd.in/emCfNQVh This group is run by NF2 Patients for NF2 Patients and a safe space to chat, no judgments and accessible to all. #endNF2 #NF2awareness #NF2Schwannomatosis #schwannomatosis #NF2support #nf2 #nf2family #nf2warrior #LetstalkNF2 #nf2charity #nf2cure #nf2treatment #nf2gene #nf2chromosome22 #nf2trials #nf2diagnosis #nf2lifeexpectancy #nf2prognosis #nf2research #nf2ismyteam #nf2awarenessday #nf2journey #StrongerTogetherAgainstNF2