Patient Advocacy’s Post

I recently came across this insightful article that outlines how patient advocacy plays into healthcare and I thought it was worth sharing. 👇 Check out this article if you’d like to learn more about: ☑ What patient advocacy means ☑ Different types of advocacy groups ☑ Ways to advocate for your own care ☑ How to take control of your health At Bridge Medical Communications | Medical Communications Specialists and through CONNECT Communications we help facilitate a stronger collaboration between industry professionals, healthcare providers and patients, ultimately facilitating a better patient journey. We believe in giving the patients a voice by providing them with the resources they need to make informed decisions. https://lnkd.in/gC-AjxaZ

My professional goal is to move into patient advocacy in 2024. Being a patient who had a rare disease, a clinical data scientist, and advocating with NMDP to reduce healthcare disparities gives me a unique perspective. Let’s talk about opportunities. https://lnkd.in/ev6rtJYA.

You might ask yourself. What is a patient advocate and how can that affect the outcome of the patient? This blog defines patient advocacy and answers some of the most important concerns one might have in taking on that role. Summary Empowering Patients: Patient advocacy is crucial for supporting patients and their families as they navigate the healthcare system, ensuring they understand their diagnosis and treatment options, and preventing them from feeling overwhelmed.   Diverse Advocacy Groups: There are various types of patient advocacy groups, including not-for-profits, associations, and for-profit organizations, each offering unique services such as education, practical support, and campaigning for public policy changes. Taking Control: While advocates can provide significant assistance, patients are their own best advocates. By educating themselves, bringing support to appointments, and staying organized, patients can better manage their healthcare journeys. Thought-Provoking Questions How might your healthcare journey change if you had a dedicated advocate? What steps can you take today to become a more effective advocate for your own health?   How can patient advocacy influence public health policies? #PatientAdvocacy #HealthcareSupport #EmpowerPatients #HealthJourney #AdvocateForHealth #genentech #gileadsciences

What a joy to partner with the great Katherine Wiet putting pen to paper on patient advocacy's expanded role in spurring innovation and driving trust. Read our thoughts on how patient advocacy organizations are evolving and what the Edelman Trust Barometer findings mean for advocacy groups here: https://lnkd.in/ePtdGn6G. #patientadvocacy #advocacy #trustbarometer #edelman #healthtrust #curevcp #vcp

🔍 Tip of the day: Harness the power of patient advocacy groups to enhance your clinical trial recruitment efforts! 🗣️ Collaborate with relevant organizations to access their networks and amplify your study's visibility within the patient community. By engaging with advocacy groups, you'll tap into a valuable source of support, insights, and potential participants who are eager to contribute to medical advancements. #PatientAdvocacy #RecruitmentStrategies

Family Centered Patient Advocacy Training - 2 days to start a career or just be a better support person helping the people you care about get through the healthcare system. Prepare ahead in this 2 day intense training. #career #support #advocacy #patientadvocate #training #train #communication #bias

Did you know that patient advocacy goes beyond traditional practice, allowing a broader impact on health outcomes? By working with patient advocacy organizations, you contribute to improving health care access and quality for all. Pharmacy students and pharmacists should collaborate with patient advocacy organizations to benefit the patient experience. Learn more: https://bit.ly/4987KaP

When you aren't connected to primary care or don't know where to go, the emergency room can be an easy first choice. apree health clinical Care Guides are helping point members to the right venue of care at the right time to reduce inappropriate ER visits. Learn more about what our clinical advocacy capabilities can help your members with today. https://lnkd.in/gXZppNDp

The Patient Advocacy Leadership Collective (PALC) is an innovative hub that provides #connectivity, #community resources, and #tools focused on #sustainable #capacity #building for patient advocates globally. #Advocacy skills are necessary for patient organizations as these allow the patients to actively participate in their healthcare, improve communication with healthcare providers, access information and resources, and contribute to positive changes in the healthcare system. The PALC is an excellent platform that is focused on supporting the growth, development, and leadership of patient advocacy organizations and offers a NextGen Leadership, Mentorship, and Global Health Fellows program. The PALC has been developed by leading global patient advocacy leaders with support from Pfizer. WPA is organizing a Webinar: Capacity Building for Patient Advocacy Groups - Introducing The Patient Advocacy and Leadership Collective – From Concept to Launch on 30th January 2024 at 8 AM EST. The purpose of this webinar is to spread awareness and build capacities by taking all concerned through this very important tool for Patient Advocacy. Register now and join us to learn from the insights of the very people who developed this platform and used it first-hand. Kindly share widely on your social media platforms, including Facebook, Instagram, Linkedin, and Twitter. Register at the following link https://lnkd.in/d4eTBxWg

Learn how patient advocacy organizations are playing an increasingly important role in collecting high-quality data for clinical research and also helping ensure broader patient representation, enhance recruitment and retention, and promote the development of patient-centered endpoints.