If you've noticed a lack of enthusiasm for patient advocacy on your healthcare team, don't worry, you're not alone. It's a common challenge, but there are effective ways to reignite that crucial passion for patient care. From understanding the underlying issues to celebrating successes and fostering empathy, there are steps you can take to transform indifference into active engagement. Have you ever faced this issue in your work environment, and what strategies have worked for you?
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💬 Last week, our community highlighted the essential role of patient advocacy in comms, with many of us integrating it as a core element of our overarching strategy. Discussions showed the need for regular engagement with patient advocacy organizations and ensuring patient voices are included in the comms development process. Key takeaway: Effective patient advocacy communication hinges on routine involvement and cross-department collaboration to ensure messages are consistently supportive and patient-focused.
There are many layers when considering comms’ work related to patient advocacy. This week, we zero in on best practices for communications when engaging patient groups. Our top five must-dos are principles that are not applied only once. Rather, we keep coming back to these every time an org has an update that could impact, even indirectly, the patient groups it serves. These apply whether you’re responsible for patient advocacy or supporting these efforts in partnership with an established patient advocacy function at your org or client. What’s your take on our list? What else would you add?
T2B Community Discussion Topic: Best Practices for Patient Advocacy Comms
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There are many layers when considering comms’ work related to patient advocacy. This week, we zero in on best practices for communications when engaging patient groups. Our top five must-dos are principles that are not applied only once. Rather, we keep coming back to these every time an org has an update that could impact, even indirectly, the patient groups it serves. These apply whether you’re responsible for patient advocacy or supporting these efforts in partnership with an established patient advocacy function at your org or client. What’s your take on our list? What else would you add?
T2B Community Discussion Topic: Best Practices for Patient Advocacy Comms
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I aim to boost clinical research sites by improving data quality, patient care, recruitment, and contract negotiations while focusing on business development for growth and strategic partnerships.
🔍 Tip of the day: Harness the power of patient advocacy groups to enhance your clinical trial recruitment efforts! 🗣️ Collaborate with relevant organizations to access their networks and amplify your study's visibility within the patient community. By engaging with advocacy groups, you'll tap into a valuable source of support, insights, and potential participants who are eager to contribute to medical advancements. #PatientAdvocacy #RecruitmentStrategies
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Board Certified Patient Advocate | Speaker | AML survivor | Stem Cell Transplant recipient | Clinical Data Scientist | Working to increase health equity for patients needing life-saving therapies.
My professional goal is to move into patient advocacy in 2024. Being a patient who had a rare disease, a clinical data scientist, and advocating with NMDP to reduce healthcare disparities gives me a unique perspective. Let’s talk about opportunities. https://lnkd.in/ev6rtJYA.
The Changing Role of Patient Advocacy
pharmavoice.com
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🌟 𝐄𝐧𝐡𝐚𝐧𝐜𝐢𝐧𝐠 𝐒𝐭𝐫𝐚𝐭𝐞𝐠𝐢𝐜 𝐀𝐥𝐥𝐢𝐚𝐧𝐜𝐞𝐬 𝐟𝐨𝐫 𝐁𝐞𝐭𝐭𝐞𝐫 𝐏𝐚𝐭𝐢𝐞𝐧𝐭 𝐎𝐮𝐭𝐜𝐨𝐦𝐞𝐬🌟 At Archo Advocacy, LLC, we recognize that one of the critical challenges in #healthcare advocacy is inconsistent stakeholder engagement. Many healthcare organizations struggle with developing clear and effective strategies for engaging with patient advocacy organizations and professional societies. This often leads to missed opportunities for partnerships that could significantly enhance patient outcomes. Understanding what advocacy organizations and professional societies truly need is key to overcoming this challenge. By gaining deeper insights into these needs, healthcare companies can create or strengthen strategic alliances that are not only mutually beneficial but also centered on making a real difference in patients’ lives. We are committed to guiding and supporting healthcare organizations in this journey. By fostering focused and strategic partnerships, we aim to ensure that every alliance is poised to improve patient care and advocacy efforts significantly. Together, we can build a future where strategic alliances lead to meaningful changes in the lives of those we serve. #HealthcareAdvocacy #PatientOutcomes #StrategicAlliances #PatientCare #HealthcareInnovation
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As we begin a new year, now is the perfect time to review your #patientadvocacy goals and determine how to make a bigger impact in 2024. This Patient Empowerment Network article outlines 12 actionable approaches to enhance your advocacy efforts in the upcoming year. Be sure to set small, manageable goals to avoid getting overwhelmed. Tracking your progress from month to month will allow you to see the positive impact you’re making in the world.
12 Ways To Become A Stronger Advocate: A Month-by-Month Guide to Achieving Your Advocacy Goals in 2024 - Patient Empowerment Network
https://powerfulpatients.org
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Learn how patient advocacy organizations are playing an increasingly important role in collecting high-quality data for clinical research and also helping ensure broader patient representation, enhance recruitment and retention, and promote the development of patient-centered endpoints.
Why the evolution of patient advocacy organizations means better data for your rare disease trial
share.parexel.social
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Learn how patient advocacy organizations are playing an increasingly important role in collecting high-quality data for clinical research and also helping ensure broader patient representation, enhance recruitment and retention, and promote the development of patient-centered endpoints.
Why the evolution of patient advocacy organizations means better data for your rare disease trial
share.parexel.social
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Vice President-Creative Services, Patient Communications, Global Meetings, Editorial and Digital Engagement at Parexel International
Learn how patient advocacy organizations are playing an increasingly important role in collecting high-quality data for clinical research and also helping ensure broader patient representation, enhance recruitment and retention, and promote the development of patient-centered endpoints.
Why the evolution of patient advocacy organizations means better data for your rare disease trial
share.parexel.social
To view or add a comment, sign in
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Learn how patient advocacy organizations are playing an increasingly important role in collecting high-quality data for clinical research and also helping ensure broader patient representation, enhance recruitment and retention, and promote the development of patient-centered endpoints.
Why the evolution of patient advocacy organizations means better data for your rare disease trial
share.parexel.social
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