Lumanity Strategy & Insight

Discussions in the industry are progressing from ‘why’ to ‘how’ to ‘now’ when involving patients in clinical research design. Our experts have identified some key themes that emerged from both the US and European Patients as Partners in Clinical Research conferences, that took place in March and May respectively. Some of these trends and themes include: - More consistent and earlier approach to patient focused drug development (PFDD) - Equitable access to research including health literacy and diversity, equity and inclusion - Measuring impact of patient engagement in research - Improving the sponsor, site and study participant partnership - Participant data release in clinical trials - Compensation for study participants Read the full report to access our key themes and reflections at https://buff.ly/3XPY7uj #PatientsasPartners #ClinicalResearch #PFDD #patientengagement #medcomms #healthliteracy #patients

💬 "As a behavioral scientist, I recognize the importance of having a deep and contextual understanding of the person behind a disease. It’s now widely recognized that individuals equipped with the knowledge, confidence, and skills to manage their own health tend to experience better health outcomes. As part of our webinar, we'll delve into using cutting-edge models to elevate patient insights and lead to more effective healthcare solutions." 💬 - Joel Shopland, Lumanity. Hear more from Joel when he presents ‘Dialing up your Patient Insights’ as part of our upcoming webinar! More detail and registration at https://buff.ly/3Y5NOCL 1-hour webinar for client insight teams: 1. Dialing up Your Patient Insights (Joel Shopland) 2. Gaining a More Agile & Holistic Market Understanding (Laura Galimam) 3. Getting Even Closer to HCPs (Mary Stewart) 4. Harnessing the Power of Generative-AI Led Role Play (Damian Eade) #Research #Insights #Patients #Pharma #Innovation #BehavioralScience

Some great thoughts and takeaways from the EPHMRA conference this week. Thank you for sharing, Damian Eade!

We are thrilled to have been shortlisted as a finalist for the 2024 Communiqué Awards in the Excellence in Communicating and Using Data category for our submission, First Consensus Recommendations for Holistic Care in Hereditary ATTR Amyloidosis. Through this project with Alnylam Pharmaceuticals, we developed the first published recommendations to recognize the value of the patient community in advocating for the needs of patients with ATTRv amyloidosis, and to call for a major shift in the current approach to its management. These recommendations were published in BMJ Open, a peer-reviewed, open access journal with wide dissemination to a global audience. The Communique Awards “recognize, reward and commend excellence and best practices in medical affairs and healthcare communications.” For more information about the awards, visit https://buff.ly/3VKouPN #CommuniqueAwards2024 #healthcarecomms #amyloidosis #medicalaffairs #patientadvocacy #ATTRv #patientcommunity

We are still celebrating the recent recognition that two of our staff were awarded at the 2024 British Healthcare Business Intelligence Association (BHBIA) Annual Conference. Thomas Markham, Associate Director, was presented with the 2024 Keith Munro Award for Best Presentation for his presentation, The TikTok Revolution: How video sharing platforms are redefining healthcare insights, and Yuliya Fontanetti, Global Head, Quality Assurance and Compliance, was presented with the Julie Stacey Award for Best Workshop Presenter (2021 – 2023.) Yuliya was also later named as Chair of the BHBIA Ethics and Compliance Committee. Check out videos of both Thomas and Yuliya as they share their pride in these awards and their involvement in the BHBIA and in the industry. https://buff.ly/3VDgX5j #BritishHealthcare #BHBIA #BHBIA2024 #healthcareinsights #ethicsandcompliance

Still time to book your place on our 1-hour webinar created for client insight teams! Our experts will share insights from 4 of the presentations showcased as part of Lumanity's recent internal Research Festival. Learn more and register at https://buff.ly/3xCaT51 'The demand for agile and focused research insights comes against a backdrop of growing industry pressures. Staying ahead of the curve not only requires a deep understanding of the intricate interplay of market trends, competitive landscape, and patient needs, but the ability to adapt quickly to changing dynamics.' Presenters include Joel Shopland, Laura Galimam, Mary Stewart, Damian Eade. #Research #Insights #Patients #Pharma #Innovation

There’s still time to register! Dive into the future of cancer management with our webinar 'Oncology 2050'! Let's challenge assumptions and explore bold new ideas to shape the next era of oncology together. Don't miss out, register now: https://buff.ly/4aBEVDs Hear from our experts: - Axel Hoos - Peter Sandor, EVP Astellas Pharma US - Jeff Bockman, Lumanity - Viraj Parekh, Lumanity - Dennis Chang, Lumanity #ThoughtLeadership #CancerProgress #Oncology #cancer #StrategyConsulting

Don't miss us this week at the European Pharmaceutical Market Research Association (EPHMRA) 2024 Conference, and be sure to catch tomorrow's parallel session, Closing the gap between segmentation and real life: how AI can help to identify levers for and develop more targeted approaches, featuring Masha Eletskaya and Damian Eade. The session will focus on segmentation research and the methods available to explain the variety in human decision-making during interactions between key actors in the healthcare process. For more information, visit https://buff.ly/3X7UEaf #EPHMRA2024 #EPHMRA #marketresearch #socialmediainsights #AI #artificialintelligence #decisionmaking #healthcaredecisionmaking

Are we on the right path in managing cancer? Find out in our upcoming webinar, Oncology 2050 as we dive into the future of oncology. From redefining treatment strategies to advancing AI, let's shape the landscape of cancer care together. Save your spot: https://lnkd.in/eFaYWZTN Hear from our experts: - Axel Hoos - Peter Sandor, EVP Astellas Pharma US - Jeff Bockman, Lumanity - Viraj Parekh, Lumanity - Dennis Chang, Lumanity #ThoughtLeadership #CancerProgress #Oncology #Cancer

We are still accepting submissions! Share your experiences and wisdom through a series of quick and insightful questions. In bringing your story into the spotlight, we help share information on rare diseases and support the community. Lumanity is committed to amplifying the voices of people living with a rare condition, and using our '29 stories' initiative, we seek to alleviate feelings of isolation, drive awareness for rare diseases, and facilitate more open and authentic conversations about the impact on patients and families. If you or anyone you know would like to submit a story, visit https://buff.ly/4em68x8 #rarediseases #raredisease #29stories #patientadvocacy #rarecondition #shareyourstory